Genogirl doesn't know this yet, but she's going to get a 2-3 day break from her shots. We are going to Alaska for 2 weeks starting on Saturday, a few days of which we will spend camping in Denali National Park (assuming the weather cooperates).
I called Pfizer and explained that we'll be in the back country without access to refrigeration, and asked for advice about how to store the meds while we are camping. They said that they have no information about the stability of the drug outside the recommended 36-42 degree range.
I find this kind of strange. In fact, I doubt that they have no information about its stability outside the proscribed temperature range, given the amount of research I assume they have done on this drug. Or maybe they haven't done as much research as I would hope they would have.
So anyway, I called her endocrinologist, who basically said to leave the stuff in the fridge at my aunt's house and just not do the shots for the few days we are away. I haven't told Natasha. I wonder how she'll react. I imagine it will be a relief, but at the same time I know she is happy to be growing. I'll report back...
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2 comments:
I hope she enjoys the break. Have a great time camping.
Hi, Just found your blog and I am so grateful. My daughter will start Genotropin next week. She is 4 and a half years old. Currently she is about the size of a 2 year old and after all the testing it appears she has a text book case of growth hormone deficiency. This was good news in a way because we were so concerned the small stature might be part of larger issue. Anyway, I instantly felt better reading your blog and look forward to following your progress. Thank you for sharing yours and daughters experiences, I am sure this will help many people. If you ever want to contact me, feel free mrsgottfried@gmail.com
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